
Once again I find myself lagging in my posts. And, once again it isn't because nothing has happened. No, no...that never seems to be the case. It's parts of the "old " me that I would rather have not had return after this fight for my life that have managed to find their way back to me like a bad penny. Let's face it, I am an A-type personality. I work hard, too hard. At any given moment I have about 5 or 6 balls in the air. My work has been suck the life I fought so hard for right out of me. Not good. I need to drop a client....easier said than done. The client I need to drop is a dear friend that stuck by me through this whole wretched ordeal. Yet, it is typically the work I get from her that puts me over the edge. *sigh* It's never easy, is it? Also, the parent company that she works for, well, they suck. It took me forever to train them to pay me on time and they are always penny wise pound foolish. I know it needs to be done I just not sure how. Also, I need to learn to say "no". I find that I am always so grateful that my clients came back to me that I never want to say no to anything. Enough about work....on to the rest of me. Well, the Cellcept finally seem to have made a substantial reduction in the hand and foot cramping. It's not completely gone and when it does happen it hurts like hell. But, it is on the right track. The vaginal GVHD...who knows! It's better, it's worse, it is a roller coaster like so much of the GVHD is. One other symptom that has resurfaced is the stiffness. It is probably the most troubling and hard to live with. But, I am managing. As I have said so many times before (sorry for being so whiny) I find this GVHD infinitely frustrating. On the very positive side I have been working more closely with the Leukemia and Lymphoma Society and am part of their Light the Night Leadership Team. I hope through my own team that I build, corp. sponsorship and corp. teams I help build I can raise a total of $10,000. It will be tough but I think I can do it. Also, I was able to lend my ear and speak about my experience with a woman who's mom was just diagnosed with non-Hodgkin lymphoma. I want to do more of that. So, the picture is of my latest TSV on QVC. Not sure how it did but should get a read soon.

0 comments:
Post a Comment