Back on the Prednisone Pony

Well, it finally got to that point. I kept swearing to myself that there was no way, NO WAY, I was going back on Prednisone. But, the stiffness, the pain..... it became too much again. Ugh. So, here I am, back on it. It's working. The stiffness is subsiding. I feel like I can get out of bed in the morning. I can move. It is a relief. This time I am only doing a "pulse" of prednisone. Just a 3 week quick course. Hopefully coming off of it won't be as bad as it was last time. It hasn't really helped with the cramps thought. They have found their way back and this time with a vengeance. My hands cramp up so bad in the evening that some nights I just sit there, rocking back and forth, crying. And, once again, I find myself back on GVHD roller coaster.

This Thurs. I will be speaking as survivor at Genzyme. It is for the Leukemia and Lymphoma Society. We are trying to start a walk team there for Light the Night. This will be the first time I have ever spoken about my experience to a group of people I don't know. I am not sure what I will say. I have an idea. But, how do you sum it up in 3 to 5 minutes, an experience that consumed a huge chunk of your life? I know I will figure it out. I am actually very excited about it. I hope my story will move the people at Genzyme to form a team. Wish me luck.